My recent talks about digital youth mental health

Hello readers,

I must apologise for the lengthy gap between my last blog and this one. My blogging activity (or lack thereof) is directly linked to the amount of time I have spent running around working, speaking and campaigning so as you can imagine I’ve been very, very busy recently.

I will be following this post up with a blog on what young people want when it comes to mental health support, and in particular what role they want technology to play. It’s something I care about passionately and have dedicated much of the last six years of my professional life to.

There have been two events I’ve spoken at recently that have acted as the catalyst to the aforementioned blog which I thought I would summarise to give you all some context and an update on what I’ve been up to recently if you haven’t been following my Twitter account.

The Kings Fund:
The Art of The Possible: How will health and care be transformed in the age of information sharing?

This first event was a roundtable discussion, it was incredibly popular as you can imagine given the title and by the end it was standing room only. It heartens me that there is such a clear, strong appetite for discussions of this nature.

It’s also one of the first events I’ve been to in a long time where I knew next to no one- often I feel I am just preaching to the converted so this was a chance to share my experiences and ideas with a new crowd.

We adhered to Chatham House Rules during the event so I can’t divulge who said what but I will say that it was very interesting how many people started their contributions with comments along the lines of “I could never say this at work..”. This suggests to me there is still a lot of work that needs to be done to bring digital to the masses in the health sector as well as a fair amount of resistance to new ways of working which is something I certainly experienced while working for the NHS.

I gave the opening talk, sharing my personal experiences of using mental health services for the last 11 years and being a digital entrepreneur and activist. This involved a quick run through of my own health journey from the age of 6 when I became symptomatic right up to where I am now aged 25.

I spoke about how much the internet and the support I received online not only helped but probably saved me, especially during my teens when I was at my lowest point. If you’ve heard me speak before you will know I have spent a good 12 years using online support such as chat rooms, message boards and in the last few years social media to provide and receive advice, information and very importantly peer support.

If you’d like to read more I strongly recommend you read this article by Dr Roger Stedman who attended the event which has the brilliant title; Time For a Digital Citizens Revolt.

Westminster Briefing: Improving Mental Health Services for Children and Young People: Identifying Need and Targeting Support 

Yesterday I found myself on a list of speakers which pretty much sums up my dream team- three incredible women who I’ve had the distinct pleasure to work with over the last few years:

Geraldine Strathdee- When I first started working at the NHS a few years ago everyone, and I mean everyone that had anything to do with mental health said to me, “Kat you have GOT to meet Geraldine, she is your kindred spirit” – I was not disappointed.

Geraldine has some serious clout as National Clinical Director for Mental Health in England but what I find truly inspirational about her is that she’s so down to earth and when it comes to mental health she just “gets it”. She  works, often 18 hours a day, always seven days a week, to try and improve mental health services. She is a passionate advocate for service user voice and involvement and I think she, against all odds, bringing about real change in the system.

She’s on Twitter and always open to ideas, comments and suggestions- in particular if you know of good practice happening in mental health please tell her so she can share the learning. She also blogs and you can find some of them here.

Lise Hertel- Lise is one of most inspiring and driven GPs I’ve ever met. She’s based in East London and also works for Newham CCG. It has crossed my mind on more than one occasion that I should probably move to her catchment area so I would never have to worry about having a bad GP-mental health experience ever again!

Lise is very forward thinking and a real believer in innovation and technology. As a service user, before I met people like Lise and other CCG mental health leads in London the idea of GPs commissioning mental health services scared the **** out of me because of my many awful experiences previously. However many of my concerns simply evaporated when I met people like Lise. I think, as much as there is a lot of risk, there is also a huge opportunity in GP led commissioning for mental health and will be watching closely to see what happens in the next few years.

Sarah Brennan- Sarah is the CEO of a charity you’ve all heard me rave about before: YoungMinds. I got involved in the organisation six years ago in January and I can honestly credit them with entirely turning my life around and giving me purpose.

Before YoungMinds I didn’t talk about my mental health offline, I didn’t wear short sleeves and I lived essentially in the mental health “closet”. YoungMinds helped me find my voice and gave me a platform to share my experiences, build my confidence and also introduced me to a group of young people who are essentially now an extension of my family.

I’d strongly recommend you:

Sign up to the YoungMinds VS campaign which has five areas in which we want to fight the pressure experienced by young people and create a mass movement for change.

Sign the YoungMinds petition to stop cuts to children and young people’s mental health services- you will be in good company as over 16,000 have already signed.

The event

I did my usual talk, very like the one I gave to the Kings Fund around what young people want from mental health services and also gave five examples of really great digital tools and services currently available including the amazing organisation I work for; BuddyApp..this will be the subject of a blog coming shortly.

We also heard from the awe inspiring work of Highfield Community Primary School in Sunderland who, through work with Place2Be have become a real beacon of hope to the children, parents and community they work with. As someone who had an awful time with mental illness at my own school growing up I really wish I had a Tardis so I could do my time again and attend this school which really prioritises the health and wellbeing of their pupils.

If you have any questions or ever want to pick my brains when it comes to technology and youth mental health please don’t hesitate to contact me, either through my twitter account or by email at kat@buddyapp.co.uk

Join our first #buddyapp Tweetchat

Join our first #buddyapp Tweetchat

On Tuesday 26th of August between 12:00-14:00 we are holding the first of what will become monthly tweet chats for anyone and everyone interested in or using Buddy App. We would like to invite you to join in the conversation:

Follow the @BuddyAppUK Twitter Account

Tweet us using the tag #buddyapp

If you don’t have a twitter account you can still participate:

Email your questions, comments or thoughts to info@buddyapp.co.uk or speak to your comms team about getting involved.

We look forward to tweeting with you!

The Buddy Team

I’m not brave

Posted on

“Thank you for talking, you are so brave”

image_preview

I talk about my mental health very openly. In fact if you’re reading this blog you may well have seen me give a talk, workshop or presentation or even on television talking about some issue or concept in mental health; usually weaving in some of my own experiences. I probably look like a natural, as though i’ve been an open book my whole life.

All in all it has taken me 19 years to get to this point. I’ve been ill or at least symptomatic since the age of six. It took me eight years to get a diagnosis, another five until I started opening up and another two  until I really made my peace with my experiences.

For the last six years, since the age of 19 I have had the incredible pleasure and honour of being involved with the mental health charity YoungMinds. Before then I was so far in the mental health closet you could saw I was in Narnia. They not only helped me find my voice but helped me to nurture it and form a narrative around my experiences.

The effect has been profound. During my school years I was completely unable to speak in front of groups of people and used to feign sickness for weeks to avoid the annual public speaking contest. The thought alone of standing up there with nothing but a sheet of notes to shield me caused incredible levels of nausea and anxiety leaving me all but paralysed. I certainly never, ever expected to stand in front of hundreds. In fact I doubt my teachers would recognise me now.

At this point I cannot comprehend what my life would have been like without these monumental changes but I do know I would have had a poorer life. I have spoken on record to such diverse organisations and people as the BBC, MTV, Royal Societies, politicians (including a PM) and many more and gained so much by letting go of my fears.

After every talk I give, people approach me. Some will put their hands up during Q&A sessions and speak openly in front of the group, many though will take me to one side after and quietly speak.

Without fail, at every single speech people do two things:

One in Four? More like four in four

1) They open up about their own run-ins with mental ill health.

Sometimes it is their own experience, something they have never disclosed before. Often it is about a friend or family member and they come to me in sadness or desperation. I have developed an uncanny ability to work out, during a talk, who will approach me afterwards.

This has taught me one simple thing; we are all affected by mental health and illness. We talk about the 1 in 4 statistic but that doesn’t sit well for me. We ALL have mental health just like we all have physically health; we sit on different points of the same spectrum. Which suggests to me that mental illness affects 4 in 4 of us..but only 1 in 4 will admit it. And perhaps even that statistic is too high.

2) “You are so brave” I’m not so sure

Secondly, I am told, almost like clockwork that I am “brave”

Now before I start unpicking this one let me say; I get it and I appreciate the sentiment. But it makes me sad.

I think what people see is a very young looking girl (more 15 than 25) standing up and opening up in a really honest way. Yes I am those things but I am much more. I have been standing up and telling my story repeatedly for six years and at this point I feel no fear, no misapprehension about what I do.

I am lucky because I do not need to be brave any more. Just myself.

It is brave to stand up and say something for the first time, to give words to wooly concepts and feelings. It is brave to stand up when you don’t know what the reaction to your words will be.

But what I have learnt, much to my early surprise, is that opening up about mental illness does not automatically mean opening yourself up to criticism and abuse. In fact 99% of the reaction I get is overwhelmingly positive and empathetic. So in fact all I am opening myself up to are compliments and smiles-that suddenly doesn’t seem too brave does it?

I am seen as brave for standing up and speaking when others don’t. And that is a damn shame. If you had my experiences you would see being open is a wonderful gift to be shared. Like I said in my blog about running up against anti-psychiatry Scientologists:

If I won’t stand up, someone who has been ill for a lifetime, used services for a decade and has worked for the NHS and mental health charities, how can I expect anyone else too?

I don’t want to be seen as brave but as a role model. I don’t want to be the only person on a podium or the token service user. I want us to stand up together, regardless of whether we are students, doctors, psychiatrists or siblings and talk.

I know it’s not very British but it shouldn’t be seen as brave either.

Join me Walking Out of Darkness

Posted on

Over the years i’ve watched many friends take part in fundraising events like Race For Life. I’ve always been so proud of their achievements and amazed by the scale of the events and the energy that surrounds them.

And yet it has always saddened me that there didn’t seem to be anything on a similar scale specifically for mental health. Sure you can take part in a thousand different types of marathons, triathlons or even do a skydive and support individual charities. I thought maybe wanting an event dedicated to this issue was a case of having eyes bigger than my stomach and being too ambitious and did not hold my breath waiting for one.

So, last year, when I first heard about CLASP charity and their planned Walking Out of Darkness event in London next month I was very intrigued.

clasp

A few weeks ago I had the genuine pleasure to speak to the man who started it all, CLASP CEO Kenny Johnston. Like me, Kenny is very open about his own experience of mental health issues and it was these experiences that led him to setting up CLASP and the CLASP helpline which will launch later this year.

Watch Kenny in this short video:

The walk will be held on July 19th starting at 8pm and there is a 5, 10 and 25 mile route depending on what you feel capable of. Personally, and sadly I will only be able to do the 5 mile walk at most this year. I am attempting, for once in my life, to be mindful of my limitations and practice some self care.

I will be joined by thousands of others including NHS England, the Department of Health, British Transport Police, Charities, Organisations, MPs and celebrities. The event is gathering huge momentum even before it has begun and I strongly recommend you follow on twitter and follow the hashtag #WalkingOutOfDarkness.

Mention me and get a discount!

I hope you will be joining me on the walk. If you do wish to register you can get a £10.00 discount by using the code “Kat10”. All money donated using this code will given to one of my favourite mental health charities, DWED, who do incredible work on a shoestring.

About Diabetics With Eating Disorders (DWED)

DWED supports people with Type 1 Diabetes and Eating Disorders and their carers in numerous ways including online, by phone and face to face. They also provide advocacy support for service users and training for professionals. I have worked with them recently alongside NHS England, myhealthlondon, London Strategic Clinical Networks and the WellHappy App on a project to raise awareness of Type 1 Eating Disorders and improve outcomes.

What was your experience of transition?

Posted on

Image

Hey everyone,

If you know me then you’ve probably heard me get up on my soapbox about the issue of transitioning between CAMHS and Adult mental health services. I wrote my dissertation on it (Growing up in the system: Making the transition from CAMHS to Adult Services, 2010) and have spent a lot of the last five years campaigning to improve this area of treatment.

NHS England, the body set up by the government to improve the health of everyone in England, has taken on the challenge of young people’s mental health transition – and is determined to improve it. Because I work for NHS England and have a keen interest in this area i have teamed up with Yvonne Anderson from CERNIS to gather your views and experiences.

When we talk about transition we mean the difficulties faced by young people trying to access mental health services after the age of 16/17. This often means a move from CAMHS (Child and Adolescent Mental Health Services) to Adult services. We know that this a big problem for a lot of young people as many struggle to get the help they need or fall through the “gap” between adolescent and adult services.

The ambition of NHS England is to place service users, patients and the public at the heart of everything they do and they have asked us to consult with you.

Tell us online by taking this short survey. 

Prefer to talk? Contact Yvonne at: y.anderson@cernis.co.uk   

Alternatively you can use your reader on this QR code and go straight to the survey via a mobile device or tablet

Image

The Girl Behind The Door: A Memoir By John Brooks

Kat Cormack:

Dear Casey, i can’t believe so much time has passed since you left but i remember it like it was last week. You will always be missed but more importantly you will always be loved. I hope you have found peace.

Originally posted on Parenting and Attachment:

TGBTD-eBookCov_03-600“This book should be a wakeup call to all adoptive parents and professionals about the urgent issues adoptees and their parents face.”

Nancy Newton Verrier, attachment therapist and author

The Primal Wound and Coming Home to Self

A Marin County, California father embarks on a journey to understand what led his seventeen-year-old daughter, Casey, to take her life. He travels back to her abandonment at birth and adoption from a Polish orphanage. His search leads to a condition known as attachment disorder, an affliction common among children who have been abandoned, neglected or abused. It explained everything. The Girl Behind The Door integrates a tragic personal adoption story with information from the experts to teach other families what the Brookses learned too late.

Who should read it?

    Anyone with a connection to the adoption “triad.”
    Anyone who has lost a loved one to suicide.
   …

View original 45 more words

Talking about mental health on the Chrissy B show

Image

So some of you may know that late last year i appeared on the Chrissy B Show to talk about mental health in a special program titled “A mental health issue doesn’t mean i’m crazy”. The show was broadcast in January and is now available on YouTube for everyone to watch.

I first met Chrissy at a great event held at Westminster University called “Living or Surviving”. Chrissy spoke about her experiences of struggling with Depression at University and how she now tries to help other people with her inspirational television program. We were joined by speakers including Paul Canonville who talked very movingly about his own experiences of mental illness in sport and Professor Damien Ridge who is a psychotherapist.

You can watch me talk about mental health, the WellHappy app and working for both YoungMinds and the NHS below. I’m not on for the whole thing but it’s worth watching the whole episode:

http://www.youtube.com/watch?v=OQLz3Nw2-4k&feature=share&list=UUHfwS2btVLvqqAQ-69c0PKw&index=3

 

mydaftlife

the funny stuff that happens

Black Dog Moan

A stand-up comic talks about living with depression.

ybrumro

Throughts of a welsh brummie.

thestrongestsmile

the strongest smile is the one that holds back a tough girls tears. #recovery

Gulwali Passarlay

The official website of a young, influential Afghan undergraduate changing the world.

saraheknowles

A blog about Mental Health Research - Technology, Trials & PPI

18orsoletters

A project for writing letters to the people who need a little lift. A smile or a written uplifting hug to someone in need of happiness.

anniecoops

The thoughts of a nurse with type 1 diabetes

Helen Milner

Chief Executive of Tinder Foundation

MLF Blog

Thanks for visiting!

IMH Blog (Nottingham)

The blog site for the Institute of Mental Health (University of Nottingham and Nottinghamshire Healthcare NHS Trust)

Rize

Rize, one thought at a time

Geek Feminism Blog

Women, feminism, and geek culture

Vanessa Garrity

Personal reflections on mental health care, nursing and social media

kirstiestott's Blog

Mother of 2 beautiful boys - determined to change the world!

Health Care Social Media Monitor

Monitoring The Pulse Of Health Care Social Media

Follow

Get every new post delivered to your Inbox.

Join 2,585 other followers