2014: My yearly review

Well it’s been another whirlwind of a year, it seems to have flown by at breakneck speed and all of a sudden it’s the end of 2014 and I’m wondering what I’ve actually done this year.

For once it’s been no surprise that the year has flown, it’s been busy after all and I’ve done quite a lot. In fact this year I’ve not only started a new job but also moved house and been on the holiday of a lifetime. And that’s on top of my usual way more than 9-5 with some volunteering and a lot of campaigning thrown in for good measure.

So here’s a bit of an overview of my year which will be followed by a blog summing up some of my heroes of 2014.

January

2014 didn’t get off to the best start as I ran around the town I was living in and London desperately trying to get ahold of some medication. Being on long term medication feels like second nature after all the years and it does go along way to levelling me out and keeping me functioning but definitely has it’s downsides. Being on a relatively unusual medication and trying to get a GP appointment near Christmas and while working full time is not a good combination and I still manage to mess up my planning from time to time.

It did get considerably better thankfully, January was the month my Chrissy B appearance talking about growing up with mental health issues was aired.

chrissyb show

I also found time for my parent’s annual Burn’s Night party at the end of the month which was, as usual completely tartan and tasteless and a good way to celebrate the end of a very long month.

February

In February I finally got a chance to do Mental Health First Aid training with colleagues from NHS England. I think it’s great that my employer gave us all the chance to do this course and, upon competition, publicised the fact the office now had both physical and mental health first aiders. As many mental health issues surface or are even caused by work I’d love to see more workplaces taking this step. It was also an opportunity to bond with colleagues, many of whom opened up about their own experiences.

I also had the opportunity to co-facilitate a special online talk for the sadly now defunct MindFullUK during Eating Disorder Awareness Week. Having spent a few years now doing something similar for YouthNet on a regular basis it was interesting to try this method with a new group of young people.

March

As the NHS Expo was held in Manchester this year I had a great excuse to start the month of March with friends Rachael and Claire and their assortment of rats.

March was also pretty amazing in that I was given a regional award at the Vinspired Awards in the “Most Outstanding Social Entrepreneur” category for my work on the WellHappy app. I even got to attend a fancy awards ceremony at the 02 with my partner Ryan, parents and colleagues from myhealthlondon.

Boyfriend looking quite proud don't you think?

Boyfriend looking quite proud don’t you think?

April

In April I had the opportunity to speak to the Clinical Senate at the Kings Fund about young people, mental health and technology. Even though it’s a talk I’ve given so many times I could probably recite it in my sleep I received an inordinate amount of praise for this one. It got me thinking about the audiences I tend to speak to; usually a group of people who have signed up because they already have an insight and interest in what I’m speaking about, in other words, preaching to the converted. This is something that’s troubled me a lot this year; how do I reach a broader audience including some of the sceptics and naysayers?

I had the opportunity to learn a huge amount when I received Dementia Friends training from Katie Nichol and since then have, unfortunately, had the opportunity to put this learning into practice. I’d recommend the course to everyone as Dementia is something we will all be affected by at some point in our lives.

I also got a chance to attend the launch of the YoungMinds HedMeds project which had been something of a labour of love and personal interest for me. Along with a dear friend, Annabelle, we opened up the event and even preceded Jo Brand who very kindly called us a hard act to follow!

Some of us with Dr.Ranj

Some of us with Dr.Ranj

May

May was a big month that began with me presenting at the Patient Information Forum conference alongside Macmillan.

This was followed by an interview for my current role at BuddyApp..the beginning of big changes.

Then the biggest media appearance of my life, a live slot on Newsnight to talk about self harm with myself and Tanya Byron taking on the legendary Jeremy Paxman. I was approached by YoungMinds and asked if I would like to appear..only a few hours before broadcast. It was probably one of the most surreal moments of my life to be sat in the BBC green room and having a chat with Mr.Paxman.

Kat Cormack on Newsnight

I am very used to being on the receiving end of calls for help, queries, comments and young people generally asking for help and advice but this has increased by an order of magnitude since my appearance. As I may have mentioned these messages usually start with the same phrase, “I’m really sorry but I don’t know who else to talk to”. While I’m glad that I’m seen as approachable it does sadden me that young people still struggle to find people to trust and open up to and how few positive mental health role models that they can easily access there are.

June

In June I received some good news about my health when I learnt that, by some miracle, my bone density is still at a reasonable level, certainly better than I could have hoped for. Throughout the year I’ve had countless run ins with the medical world from a personal perspective, thankfully most of them positive.

June was also the month where I prepared myself for leaving the NHS and my lovely team at myhealthlondon. This was bittersweet, I was going on to a fantastic new role but leaving so much behind. Having worked in the NHS for 18 months I learnt so much about what happens “on the inside” and it gave me a really helpful perspective for when I’ve got my service user hat on and am wondering why things aren’t happening the way I had hoped in my treatment. I also met the most amazing people during my time working for the NHS, too many to name here, and thankfully I’ve managed to stay in contact with most of them.

myhealthlondon team

I’ve argued for a long time that the people who work for the NHS are some of the best people you will ever meet, their kindness, compassion and work ethic can be incredible but they are bound by a system that can be slow, bureaucratic and seemingly impossible to navigate so it’s no wonder things don’t always work.

Something that really fascinated me during this time was the way the NHS is perceived by both the general public and the media.

I feel as though people see the NHS as one big, monolithic organisation, especially when they are commenting on their experiences, “The NHS did this/didn’t do this” etc. This is a serious misunderstanding as the reality is the NHS is a jigsaw (and the pieces don’t necessarily fit well), made up of hundreds of different providers and a huge number of staff. In fact the NHS is the biggest employer in Europe and can be almost impossible to navigate..even if you work in it.

Throughout my time in the NHS we also noticed a change in the media’s attitude towards us. It got to the point where everyday there was a new story coming out, almost all negative and this has a huge effect on staff morale as you can imagine. And yet when we reached out to the media to get good news stories they were passed up time and time again. Bad news may sell more papers but it’s disingenuous and can be downright dangerous in painting an unrealistic picture that scares people off and causes them to lose faith in what is still an incredible British institution.

Obviously I have had a huge range of experiences having used NHS mental health services in particular on and off for a decade. Some have been great, some terrible but it’s been a spectrum and I can’t just focus on one end. I also look at countries like the USA and think about how terrifying it must be to have to pay so much for what I would argue is a basic human right; the right to life. I look at my friends who have poor or no insurance and gasp in horror at their medical bills festooned with zeros and wonder what my own care has cost and wonder where I would be if I had been born on that side of the pond.

July

On the 1st of July I started my new role at BuddyApp. This has been such a huge but positive move for me. I left one of the world’s largest organisations to go work at a start up with less staff that I could count on my fingers and of which I am the only female so that was quite a shock to the system.

I can honestly say that working at Buddy for the last six months has been a pleasure and I have particularly liked working in a small, dynamic team and the chance to work on the edges of the NHS, working directly with front line staff.

There have been challenges certainly, getting the NHS to buy into and embed something innovative is a slow process, definitely more of a marathon than a sprint, but it’s worth it. Because when it does work, we help patients get better and support clinicians in doing their job, what could be better?

So July was mainly spent settling in, meeting colleagues and clincians for the first time and a few events thrown in for good measure. My favourite was probably the NHS England Youth Forum’s “Celebrating Positive Youth Mental Health” event which I attended with Miranda Bunting whose blog you can read here.

August 

In August I took part in another Cormack family tradition; Cropredy festival. Big events can be a challenge for me especially when it comes to my anxiety but last year I decided that this would be the one weekend every year when the mental health issues would just have to sit in the backseat and sulk. This year I kept this resolution going and had a great time as you can probably tell from this picture of me and my brother.

Cropredy festival

Sadly August was somewhat marred by ongoing issues in our housing situation, most notably problems with our neighbours. Having moved into our flat two years previously and built a wonderful home for ourselves, my partner and I found the last year unbearably stressful due to issues next door which culminated in a police raid-a pretty traumatic experience for anyone.

For me a home should be somewhere that you feel safe and by the time we decided to get the hell out of dodge this was no longer the case. It has been a huge step and at times a bitter pill to swallow but, for the sake of our sanity, we left and moved in with my parents.

After 7 years away from my hometown it’s obviously taken time to adjust but I’m lucky that I still have some great friends in the area and above all a ridiculously supportive family who have taken in both myself, my partner and our ridiculous and noisy cat. It makes it easier knowing that this is a temporary solution and I’m grateful to have this time to settle, relax and rebuild.

September

September was dominated by the holiday of a lifetime as me and my family embarked on our Trans-Siberian Railway adventure. There’s definitely an entire blog post to be made out of this at some point considering we crossed China, Mongolia and Russia in 16 days and saw and experienced so much I don’t even know where to start. As someone who commutes 5 days a week as it is the idea of being on a train for the lion’s share of a fortnight initially didn’t appeal much but believe me the tube and this experience just don’t compare.

Rocking my YoungMinds Vs tshirt on the Great Wall of China

Rocking my YoungMinds Vs tshirt on the Great Wall of China

Some highlights include seeing the Terracotta Warriors, standing on the Great Wall of China in my YoungMinds Vs tshirt, drinking the water of Lake Baikal and being chased around China by people who had never seen redheads. I think my brother, all 6 foot of his bearded, tattooed and pierced self was a bit much for some of them. My brother was a bit bemused by this too, as well as many of the tshirt slogans we saw.

A confused James

Upon my return the rest of September was mostly spent given presentations at The Kings Fund, Westminster Briefing (The role of technologies: what young people want from services today) and attending the NHS AGM and NHS Citizen event where I may have caused a bit of a stir by wearing a protest t-shirt from 38degrees on stage with the NHS board of directors..oops..

October

In October I went to the launch event for the London Health Commission Better Health for London report which was held at the House of Lords and involved a lot of alcohol (how the other half live!).

The highlight of October and in fact one of the top events I took part in during 2014 was CLASP’s Walking Out of Darkness event. Over 300 of us descended on London for a 10 mile walk to raise awareness and funds for mental health and in particular, suicide. We raised a staggering £30,000 and are already planning the next event, you can join us on May 16th and raise money for whichever mental health charity you choose.

claspwalk

I also became a trustee for CLASP and have had the pleasure of working with the CEO and founder of CLASP, Kenny Johnston.

November

November truly felt like conference season was underway with me speaking at both Health 2.0 and HANDI Health Apps during EHILive about Buddy app including my experiences of using Buddy in my own treatment.

I also filmed a short piece for Techforgood.tv which you can now see here.

On top of a lot of travelling during the month I also found time to attend the Social Enterprise UK Awards around the corner from our office in Old Street. It was great to do something fun with my colleague James Ryan and I loved the atmosphere, social entrepreneurs in the UK are a fairly close knit and very supportive bunch and I’ve really enjoyed entering this world in 2014.

Social Enterprise UK Awards

December

Far from winding down towards the end of the year it feels like there was even more going on than usual during December.

I gave a presentation at UCL to Clinical Psychology students about the pros and pitfalls of peer support and social media for people experiencing mental health issues. During this I was reunited with the fabulous Tanya Byron who I shared the screen with during my Newsnight appearance. I also had the chance to have a sneaky drink with the lovely Grace who I know from VIK days, I think the students were a bit surprised to see me in their bar after the talk but it was the last day of term so I blame getting caught up in the atmosphere!

I also sat down with young people from YoungMinds Vs project (the next and very exciting generation of activists, definitely worth checking out) and Norman Lamb to discuss youth mental health, you can find more information from our afternoon with the minister here in a great blog written by two of the young activists.

On a personal note the most touching experience I had this month was helping out one of my role models Monique-Amy Newton in her annual “Help the Homeless” event. Sadly I was only able to attend one evening but we gave out clothes, food and toiletries to a large number of people both on the streets and in hostels. Their gratitude for a bowl of soup or pair of gloves was humbling and really put my own life into perspective.

Helping the homeless at Christmas

TL; DR: Overall it’s been a whirlwind of the year. I’ve had some of my greatest experiences and biggest challenges. I’m very thankful to have some time off between now and 2015 when it all starts again. Hopefully onwards and upwards to better things.

Thank you so much for everyone who has supported me this year, it has meant the world. I’ve stayed in contact with some great people and met some truly inspirational movers and shakers in the health and social care world. It’s people like these that give me the courage to keep going, keep standing up for what I believe in and keep fighting the good fight.

A particular thank you to my family, the never ending support of Ryan Jackson and a particular thanks to two ladies who have had me both in tears of laughter this year, founder of Diabetics With Eating Disorders (DWED) Jacq Allan and Kat Pugh who runs the wonderful #EndTheWait campaign for earlier intervention in Eating Disorders. I’m very lucky to be surrounded by powerful, disruptive, caring female role models.

Acceptance speech perhaps?

It’s taken me awhile to put out this first blog of the year. After the literal and figurative madness that sums up the end of 2013 I for some reason naively thought January might be a bit quieter..how wrong I was!

Over the Christmas holidays I was surprised to discover I had been nominated for not one but two awards from Mentally Wealthy. I’m a long time reader of the site and previous iterations such as This Week In Mentalists and have a huge amount of respect for the bloggers involved so I was certainly not expecting to see my own name appear in the nominations!

I came runner up in This Week In Mentalists Award 2013 in “Campaigning” and the Twitter based
Twental Health Awards 2013  in “Professional Not Otherwise Specified”.

Clearly all those teenage years hidden behind a computer screen blogging, moderating and being on social media paid off!-I have of course pointed this out to my parents to show them I didn’t waste my teenage years online! It is still something I have to pinch myself over though. As someone who at points genuinely didn’t expect to see her 16th birthday let alone their 24th it amazes me how far I have come. I’ve said many times before that if I could go back and tell my 14 year old self what things would be like in a decade I would most likely laugh in my own face. I am proof that it can and does get better even if “better” isn’t what you expected or planned.

Then, as if that wasn’t enough (and believe me i was taken aback as it was), Vinspired announced that I was a Regional Winner in their Vinspired National Awards as “Most Outstanding Social Entrepreneur” for my work on the WellHappy app.

This is a huge thing for both myself personally and for the WellHappy project and I am still so stunned that I’ve won.

So I guess I have to do some kind of acceptance speech? Don’t worry i’m not going to sit here for the next 10 pages and bore the pants off you but I do have some people that need to be thanked for their part in this.

YoungMinds

Firstly I need to thank YoungMinds which includes all the young people and staff I have been so fortunate to have in my life these past five years. It’s corny but it’s also fair to say that I could not have done this without you all and you deserve a lot of the credit for this award. Before I started volunteering with the charity I was very much in the mental health “closet”..now I am winning awards for speaking out about mental health & wellbeing. Participation helped me find my voice and campaigning gave me a platform and a purpose and I don’t dare think where I would be now without your support.

NHS

I also want to thank the NHS or more specifically my employers and colleagues within the NHS and in particular at myhealthlondon. When I was brought in to work in the NHS on secondment from YoungMinds for the WellHappy project it was a test, a trial run for 4 months. 15 months later I am still working with you after repeated contract extensions and a promotion. You took a chance on me, knowing full well all of my mental health history and that I was still technically a “young person”. It has been a pleasure having a job where I actually feel accepted and like I am able to do some good and make changes for the better.

And I would also like to say a big thank you to my wonderful friend Jenny Hills for nominating me.

And one last thank you to my long suffering boyfriend Ryan Jackson for putting up with me while i run around like, (once again both a literal & figurative) crazy lady. I certainly couldn’t have done half as much over the past 5 years without your support.

Anyway that is quite enough gushing for me for one day, i’m not sure it suits me! At this point I would probably trip over my feet on the way off stage.

And the thing is, this was only the start of the year and much has happened since then, but that is for another post.

Why participation is important to individuals and organisations: an insider’s view

This is a speech i am giving at an NHS England meeting:

Everyone’s business: Patient engagement, experience and involvement

nhsenglandlogo

 

 

 

 

 

 

 

 

My name is Kat and i am the project manager for myhealtlondon’s WellHappy app for young people in the capital.

I’m also a service user and i’ve been using mental health services for about a decade now. When i was 19 i was lucky enough to become involved with the charity YoungMinds as part of their participation project for young service users; the VIK Project. That project has sadly ended now but was a huge part of my life for 4 years.

I came to this event knowing that i would be the only service user (at least openly) and the youngest person here so i’m here to talk to you about a couple of things from my own experiences, especially in relation to youth services & mental health although a lot of what i have to say has much wider applications.

And as much as i am very thankful for the invitation to speak today it doesn’t sit right for me. I’m not special and i am not representative of the areas i campaign around, especially the somewhat catch all group of “young people”. After all how can one person be?

I consider myself to be incredibly privileged to stand here in front of you today and share my experiences with you. But i kind of wish it always me on the stage!

And believe me i’m not the only one out there with an opinion, with things to say. But unfortunately there are still a huge number of barriers in the way of young people actively participating in not only the services they use but their own health.

Some of these barriers are tangible, things like running participation groups at times where young people are not able to attend, but a lot of them are more insidious, they are part of a culture which i believe needs to change.

It’s a problem that is widespread and not just applicable to health services. Young people are all too often  dismissed as being apathetic and disengaged with nothing worth saying. We’re told our exams are getting easier and we’re getting stupider and fatter.

And the media is full of awful depictions of the worst side of a very small number of young people. I work with a lot of young people from Tottenham and the surrounding area who live in the areas worst affected by the riots a few years ago. They speak of their despair at the way young people were targeted by the media. Never mind that some of the looters and vandals were grown adults, there was even a teacher in there! All the focus was on them.

In fact a whopping 76% of all press coverage on young people is negative and a shocking 39% of adults cannot not think of a single positive thing that young people do.

Not surprising then that surveys have shown that 1 in 4 adults would cross the street to avoid young people

And if you were a young person why would you want to engage with people who had so clearly written you off before they had even met you?

This is a dangerous state of affairs when we know how incredibly important prevention and early intervention are. But would you trust official figures like politicians and police or even feel comfortable talking to your GP expecting to meet this level of prejudice?

And how as a clinician or a service are you supposed to engage with people who are actively trying to avoid you because of this? It creates a very damaging “us” and “them” culture and shuts down potential dialogues.

It becomes very easy to only engage with the loudest, most active young people who come to you. Easy to ignore the hard to reach groups, for example young men and the BME community are hugely underrepresented in mental health participation circles. And the problem with this is, yes it’s great that you’re engaging service users, but you’re still only consulting a tiny and not representative group. The more people you consult the more points of view you have and the more likely that changes will be made for the common good and not just the perceived good.

And is such a shame because participation can change lives, i’m a perfect example.

Being a young person and a service user can often leave you feeling a number of less than optimistic things about yourself. You can feel like you don’t have a voice and that your opinion doesn’t matter and will never be heard.

It’s easy to become just another statistic and to begin to feel the way that you are treated by professionals who often label you as “manipulative”, “attention seeking” or a hopeless case.

You can feel like you have no right or ability to make even the most basic decisions about your care and your life in general just because you are young and have mental health problems and this is nonsense.

And it can also be dangerous self-prophesising. If there is no point why bother trying?

I know that before i joined VIK i definitely felt like this. I wanted to make a difference and to help change the mental health system so others wouldn’t have to go through some of the things i have and would have a better standard of care but i didn’t have the faintest idea as to how to go about this and didn’t think it was possible, especially not as an individual.

After all where do you start? How do you get people to listen to you and who should be listening when the government and the NHS are so vast and feel so faceless?

But then due to pure chance i became involved in YoungMinds VIK panel and things started to change for me. It took time, it took at least 6 months before i really understood what participation was and it came as a real surprise to me! I’m allowed to get a second opinion? I’m allowed to ask, i don’t just have to sit there and have things like therapy or medication done to me and i can be an active participant in my care! Let alone actively participation in the design and delivery of services. Or being able to give feedback on government policy that directly affects me.

Unfortunately this all happened long after i had left CAMHS. Funnily enough the reason i left CAMHS was not because i was in any way “better” or “recovered” but because i was jaded, disengaged and no longer saw the point. All dialogue between myself and the team had completely broken down.

Oh and just to point out during my time in CAMHS the closest i got to experiencing participation was once being asked to fill in a small form about how i would like the waiting room to look. This in fact is quite an ongoing annoyance..if i had a pound for everytime i had been asked about a waiting room i would probably not have to work!

So just so you know for the future waiting room decor is not participation, it is tokenism at best!

Thankfully though when i went into adult services i had all this new knowledge at my fingertips and it has, overall been a much better experience. I have the confidence and the knowledge to know when something isn’t right and can now stand up for myself-for me this is HUGE. Not only that i can engage with professionals, we can have honest discussions and make shared decisions. It feels so much better to work in partnership and not just be prescribed to!

You would not recognise me if you met me 5 or 6 years ago. I could barely leave the house, i couldn’t put my hand up in class, i was petrified of public speaking. I had no self worth whatsoever.

YoungMinds have provided me and the other VIKs with some absolutely incredibly opportunities. While i was in CAMHS i never thought that i would, for example, meet politicians, go to government meetings or be able to get my voice heard through national publications and radio programs.

But through VIK all of these things and many others have been possible and it is hugely encouraging and empowering. When we speak at conferences we are often approached afterwards by professionals who are completely taken aback by our ability to present ourselves and our experiences in an eloquent, coherent manner and talk with great passion about what we feel should be done to change the system.

I think this shows that even professionals who deal with young people on a daily basis are often unaware that we are unable to express ourselves or know what is best for us. That is why being a part of VIK was amazing. It gave us a chance to prove people wrong and hopefully change some people’s minds about what it means to be a young service user and what we are capable of.

When i ask young people i come into contact with what they think their rights are in relation to their healthcare, especially mental health care, i get laughed at. In fact most of them don’t even know what their human rights are.

“We have rights?”.

Imagine if we got things right this time. If the experiences i have been lucky enough to have were common practice.  Too often participation is seen by services as a nice add on, a favour to their clientele, it’s an after thought if anything is left in the budget.

Imagine if participation was just part of the process, if we spoke about it at schools and explained why it is important. If we actually taught kids their rights. If we taught them about the services that they could use if they needed it instead of the current system when you only find these things out too late..when you are stuck in the middle of services. It’s a scary place to be when you don’t know what’s happening.

My parents have always said that the worst thing was that they had no knowledge of the mental health system before i got ill. They too felt thrown in the deep end. Unsure of what was happening, what was meant to be happening and what they were allowed to do or say. I’m so glad that because of my experiences, if my kids ever have issues, i will not only know what to do but have the confidence to help them and fight for them if i have to.

If we get things right we could have a group of people, the next generation in fact, who  are health-literate and havethe skills and the support to be empowered, confident enough to take control of their health and their role in services and the desire to change things to make them better instead of the current model i see which is enduring and then escaping services never to return or even think about them again.

It’s a big ask i know but i also know it would be worth it for everyone.

And that is why i make it a priority in all the work that i do to involve as many young people as i can. I want to give as many of them as much of the experience of participation as i did that i can so that they can grow, flourish even and help pave the way for a better, healthier future for everyone.

My WellHappy app launches at Expo

Myhealthlondon attend the Healthcare Innovation Expo

On March 13th and 14th 2013 members of the myhealthlondon team attended the Healthcare Innovation Expo at the Excel Centre in London. We were there to highlight our website, our dementia community and to launch the WellHappy app for young Londoners.

It was also a great opportunity to find out what else is happening in healthcare at the moment and we met lots of interesting new people including service users, clinicians and commissioners. We also bumped into Lord Victor Abedowale, the Chief Executive of Turning Point and had a chat about WellHappy and how some of Turning Point’s services for young people are included.

 

The Appzone and Health Apps Library

One of the main attractions at the Expo was the Appzone which you can see in the pictures below. It was here that the Health Apps Library was launched by the NHS Commissioning Board.

Over the two days of the expo ten brand new, never-before-seen apps were launched including our own.

It was a great opportunity not just in terms of the amazing platform to launch our own app but also to meet other developers, designers and teams involved in app development. We shared a lot of learning on the day and have had lots of interesting conversations since, showing that what happens at Expo doesn’t have to stay there, especially not with the invention of Twitter! It’s great to see so many clinicians embracing social media and using it to help their patients and provide information and insight into the medical world.

You can find out more about the App Zone and Health Apps Library by visiting the site here or by following @healthappslib on Twitter

 

Launching the WellHappy app

 

Kat Cormack, project manager, and Bruce Kynoch, Assistant Stakeholder and Marketing Manager launch the app.

Bruce and I gave a short presentation to the audience in the Appzone to officially launch the WellHappy app. This involved talking about the app, where it came from, whose ideas went into it, who helped us develop it and what it was like working on a project of this kind.

We also gave a quick demonstration to the audience on how to use the app and encouraged people to download it from Google Play or the Apple App Store.

Joining us were colleagues from LivingWellBrightLemon and Digital White, our design and development companies who have been so integral to the making and launching of the WellHappy app. It was great to have their support on the day and to have them around to answer any technical questions people might have.

People also had a chance to try out the app on tablets at the event and give us feedback right there and then. It was great to see people trying out the app, searching for services near them and then going to download it on their own phones! All the feedback we got was incredibly positive and it was good to hear clinicians say how useful even they would find an app like ours!

It just shows that WellHappy can be used by anyone, you don’t need to be a young person to find the information in it useful and if you work with young people, whether you are a youth worker, doctor, nurse or a teacher in London it is worth a look.

 

Risk, resilience and young people online

A few weeks ago i attended two conferences on how young people use the internet and the risks and opportunities involved. Both were fantastic experiences and i not only enjoyed attending the conferences and hearing from young people and practitioners around the country but also presenting to such fantastic audiences.

Munch, Poke, Ping

The first conference, “Munch Poke Ping”, was hosted by Stephen Carrick-Davies and was something i had been looking forward to for a long time given that the subject matter was so intertwined with my own experiences and work. Originally i had asked Stephen, who i met through Katie Bacon of Online Youth Outreach, if i could attend. This led to me not only attending but also presenting at the conference about my own experiences of using the internet as a therapeutic tool, the positive power of peer support and the work i am doing currently with YoungMinds and MyHealthLondon.

The conference was attended by professionals working with children and young people from a variety of perspectives including teachers, support workers, youth workers, psychologists and others and the line up on the stage was just as varied as the audience itself.

Among the line up were speakers from PRUs including pupils, staff and a headteacher as well as Online Youth Outreach, Blackberry and Dr.Richard Graham who works with young people with technology addictions.

Although i am well versed in public speaking this event, for me, was a little daunting as it was my first foray into speaking as a professional and not just a “young person” or “service user” (the labels normally attributed to me). However as soon as i had a microphone in front of me i was fine! (Something that i imagine would shock those who went to school with me where i was known for being quiet and anything but happy about standing up in front of large groups of people).

After a somewhat dark session in the morning looking at grooming i spoke about the positive effect of the internet and how i believe it has helped me and helped me help others over the years. I did this through talking about my own experiences of mental illness and using and running support groups and forums online. I wanted to stress that not everything that happens on the internet is bad or untoward and that actually thousands of young people are helped every day by the peer support they receive online.

I have noticed that professionals, when considering young people and their internet use (especially “vulnerable” young people), find it very hard to see beyond one thing. Risk.

This means that projects are often slowed down or more likely not even considered, I hear a lot of fear and dismissal of service user involvement and participation let alone the concept of peer support within this.

My answer? Yes there are risks involved in going online, and yes some people are more “vulnerable” than others, however there is risk inherent in all areas of life. Risk is a fact of life and people will do “risky” things regardless, you may not be able to stop it but imagine the effect it would have if you could at least help manage and minimise it.

The ban and block  culture and our fear of the worst case scenario paralyses us and certainly does not move us forward.

 

And while bigger organisations are pondering all the worst case scenarios of having even, say, a pre-moderated, closed forum for service users, service users like me have been doing this for a decade now.

And i understand the fear that exists, believe me. I understand the fear of lawsuits and Daily Mail fodder but please bear in mind it can be done, and done well.

It’s not about trying to making risk obsolete, it’s about building resilience, educating young people and providing support; just check out what the Cybermentors do.

There are safeguarding measures that you can put in place, so many i wouldn’t know where to start..and do you know what? A lot of them are common sense! Like not giving out personal details online, just like you shouldn’t give them to a stranger in the street.

I’m sure most young people would tell you too that we don’t want to be wrapped in cotton wool and actually we need to learn by experience.

Personally i doubt exactly where i would be today without the peer support i have and currently still get online, i don’t imagine it would be a good place.

It has been a part of my life for around ten years now including before, during and after more conventional psychological help. Yes the help that i was receiving wasn’t from someone qualified in any paper-based way but i was fully aware of that going in. Not only that but the support was free and, unlike most mental health services, available 24 hours a day, 365 days a year. A stark contrast to most service provision which operate on a strictly 9-5 basis (with a few exceptions of course). No two year waiting lists in sight either..

I don’t blame the services. I understand the pressure they are under, it was pretty bad ten years ago and with the brutal cuts to the NHS things aren’t looking too good here on the ground right now.

Peer support should be encouraged, as a grass roots movement of sorts it already wields immense power and touches and enhances the lives of thousands. Just look at the hit counts on websites that are already doing it. And look at how successful ChildLine and Beat Bullying for great examples of how to reach out online.

It was amazing to be given a platform to speak about something that is so important to me both personally and professionally. It is the reason that with YoungMinds and MyHealthLondon i am developing an app and website to help young people who need support.

I met some incredibly interesting people throughout the day and the conversation continued both at the conference and on twitter (#mpp #munchpokeping).

The day after was a conference run by YoungMinds and ACAMH titled “Young people in the internet wilderness: a ticking time bomb?”,  my next post will be coming shortly!

Name our app and win a prize!

shutterstock_64221979YoungMinds and Myhealthlondon have teamed up to help young people in London. We are doing this by developing an app and website to help young people find help when they need it; whether that be with mental health, sexual health or drugs & alcohol use.

Help us name our app for young people and you could be in with the chance to win either an ipod or £50 of high street vouchers.Good luck everyone!

Please share this message!

Enter the competition

Our first focus group

On Friday i ran the first focus group with young people for our Wellbeing app for young Londoners. Although we didn’t have as many people as we expected the day was still a great success and we were inundated with suggestions and ideas.

We split the group into three sections to cover three of the biggest areas we identified previously: the look and feel of the app & website, the content it needs to have and how to launch it so that it reaches as many young people as possible.

We had some really innovative ideas for all areas and are currently feeding back young people’s responses to our designers and developers: we want to make sure that young people are not just given an opportunity to express their ideas but that those ideas are taken seriously, taken on board and made into reality.

The focus group was a great pilot and we will be running more over the next few months both on and offline so if you would like to find out more or even get involved please don’t hesitate to contact me at Katherine.Cormack@london.nhs.uk