The WOW Petition just reached 100k signatures

Today the WOW (War on Welfare) petition reached and in fact exceeded the 100,000 signature mark.

Why is this important?

The petition calls for:

A Cumulative Impact Assessment of all cuts and changes affecting sick & disabled people, their families and carers, and a free vote on repeal of the Welfare Reform Act.

An immediate end to the Work Capability Assessment, as voted for by the British Medical Association.

Consultation between the Depts of Health & Education to improve support into work for sick & disabled people, and an end to forced work under threat of sanctions for people on disability benefits

An Independent, Committee-Based Inquiry into Welfare Reform, covering but not limited to: (1) Care home admission rises, daycare centres, access to education for people with learning difficulties, universal mental health treatments, Remploy closures; (2) DWP media links, the ATOS contract, IT implementation of Universal Credit; (3) Human rights abuses against disabled people, excess claimant deaths & the disregard of medical evidence in decision making by ATOS, DWP & the Tribunal Service.

As the petition passed 10,000 signatures the government were required to submit an official response, they stated:

This e-petition will remain open to signatures until the published closing date and will be considered for debate by the Backbench Business Committee should it pass the 100 000 signature threshold.

This has now happened.

You can also add your signature here.

Advertisements

The problem with IAPT

I’ve just been referred to IAPT when i really shouldn’t have been, i will explain..

A bit of background: most of you know that i have struggled with various mental health issues for the majority of my life. I’ve also used mental health services on and off for the past decade to try and move towards that elusive “recovery” we hear so much about. I’m also a very well-informed service user with 5 years of  experience working with organisations like YoungMinds-basically i know what i’m talking about when it comes to mental health and in particular what is best for me.

I recently went back to my GP in a very distressed state. My anxiety recently has been through the roof and it’s had a crippling knock on effect on my mood and several other conditions which in turn has lead to a sharp deterioration in both my mental and physical health. Basically i was not in a good way-another bad downspike in what for me is a severe and enduring problem.

This one GP in particular is one i try to avoid as we have had several clashes over my treatment in the past. After refusing to prescribe me more medication she offered to refer me back for CBT (which i have had previously & has been relatively effective). I agreed but pointed out it would probably be at least a year until i was seen and that i would need to continue medication in the meantime (which she was not happy about). She told me that several of her patients had only waited a month or two.

This struck me as odd-i look back and want to kick myself; i should have known why.

She was not referring me back to the adult CMHT who have seen me before and know me. She was referring me to IAPT.

I have since been back to the surgery to see a different clinician who confirmed exactly what i already knew: i should never have been referred to IAPT and my local IAPT service won’t take me-i am too severe a case with far more than mild-moderate Depression/Anxiety.

It’s very frustrating to continually have to educate clinicians myself about things they should know about-mental health and services in particular. I often have to explain mental health conditions to GPs (who do not need to have any training on mental health to qualify by the way) or tell them about third sector services in the area that they could refer people to.

I am exhausted from having to constantly and almost aggressively self advocate in order to get any treatment at all.

Oh the irony..

For me this is actually almost painfully ironic.

You see while i was a VIK at YoungMinds i was part of several consultations on IAPT before it was up and running and i even facilitated group workshops for other young people on the subject. I liked the idea in principle, after all it would offer therapy to so many people who usually wouldn’t be considered “ill enough” or would have ended up of the bottom of the average 18 month waiting list of adult mental health services. It would also bring in a self referral element often lacking from statutory mental health services and the waiting lists they suggested were much better too.

But i did argue one point very strongly:

My concern was that the implementation of IAPT might lead to cuts in other psychological therapies on offer and that we ran the risk of IAPT becoming the be-all and end-all. This is because IAPT is quicker and also therefore cheaper than more traditional talking therapies making it more attractive to commissioners and cash-strapped trusts.

I said repeatedly that there must be safeguards put in place and that clinicians and patients needed to be fully aware that IAPT is not appropriate for everyone, especially not those with more severe issues. Especially as IAPT often offers just 6-12 CBT sessions which are not appropriate for every condition and often not enough (i’ve had about 30 sessions over the years so far and i’m still painfully ill).

Sadly it seems my fears have been realised.

From January-March 2012/2013 259,016 people were referred to IAPT but only 154,722 entered treatment which suggests to me that i am not alone in being wrongly referred to the service. (Source: Health & Social Care Information Centre IAPT data set).

I have also spoken to a large number of people, especially in the 18-25 age range who have been referred to IAPT when they should not have been.

I would be very interested to hear of anyone else’s experiences of being wrongly referred and will be voicing my concerns on this matter to the NHS and YoungMinds.

What is IAPT?

IAPT stands for “Improving Access to Psychological Therapies” and is an NHS program to extend access to talking therapies for over 18s in England (there is also CYPIAPT for children and young people). It is usually offered to people with mild-moderate Depression, Anxiety or Stress.

Patients and the public give their views on NHS 7 Day Services

As a mental health service user and an NHS staff member i was recently asked by NHS IQ to give my views on what the effect of not having 7 Day Services has on patients. You can see me and other members of the public and patients giving our views here.

EHI Live 2013

Last week was a busy one, i was at EHI Live 2013 in Birmingham on Tuesday and Wednesday and wisely for once chose to take the rest of the week as leave to recover: i predict many of you that know me just fell off your chairs reading that last part!

I was one of the speakers at the HANDI Health App conference as part of EHI Live 2013 and it was a great experience and quite unlike most big events i’ve been too in the past.

Live-and-HANDI-logos

Now this is really silly but i must confess that at first i had no idea what i was signing up for. I was approached by Ewan Davis to speak at HANDI Health about my experience of working on the WellHappy app. I’m always more than happy to talk about the app (in fact you try and stop me!) so i quickly said yes.

It was only after i said yes and got some more details that i realised i was going to be speaking at EHI, one of the biggest health/tech events in the calendar!

It was nice to know that i was going to be in good company, i found out early on that Sarah Amani who i met in person for the first time recently at the IAYMH Conference in Brighton was speaking the day after me about developing the “My Journey” Early Intervention in Psychosis app. I was also going to get the chance to meet up with an old VIK friend Mark who i don’t get to see often now that the project has ended.

The first person i ran into at the event in fact was Geraldine Strathdee, the National Clinical Director for Mental Health in the NHS & Royal College of Psychiatrist award winner. I had been so busy preparing for my part of EHI that i didn’t even realise there was also a workstream dedicated to Mental Health Informatics.

Being the massive nerd that i am i ended up attending a talk and one of the workshops on mental health informatics and in particular the Mental Health Minimum Data Set produced by the Health & Social Care Information Centre. I won’t go on about this bit as i know it’s niche but if this is your area i strongly recommend you read into the minimum data set. It’s where we get much of our mental health statistics and is only going to grow in terms of the amount of data and it’s importance.

Overall the event was very interesting, a lot more tech based than most of the events i attend so i definitely feel i learnt a lot that i probably wouldn’t have otherwise. It was also a chance to check out some really innovative things like a 3D Printer being used to make artificial limbs and a game you can play with eye movement detection-so completely hands free!

I will leave you with a slightly more off the wall note..the conference was also a good excuse for silly free things..apparently stress balls are out and odd animals are in. I’ve been picking up these oddball things for years now and these are the new additions to what i jokingly call my stress farm! I also have a telephone, sheep, cow and a stress pizza of all things knocking around somewhere..

Yes i know i have weird hobbies..

Yes i know i have weird hobbies..

Do we really care about cyclists in London?

After 5 cyclists in London died in the last 9 days it’s time to start asking some serious questions

ReverendRyu Writes . . .

Unprecedented and extraordinary cycle deaths leave London bewildered – BBC UK

Image

 

“Five cycling deaths in nine days is unprecedented and extraordinary and there is no doubt it has left many people in London bewildered.”

Bewildered? Really? I’ve been a cycle courier in london, both motor- and bi-, and there’s one constant, one truth amongst couriers – london hates cyclists. The point being – in our day to day existence, performance is critical. if our performance is less than 100%, we burden ourselves with fear & doubt – brought upon us by the constant drive to achieve unattainable perfection, which is plastered across every single form of public media from here to Kathmandu.

This drive for perfection affects us deeply, as individuals. It makes us less caring for our fellow man when we in times of stress: we see them as unnecessary complications or distractions, they just don’t matter; only…

View original post 372 more words